Optica spectrum disorders: data from the patientslikeme online community few studies have evaluated patient perspectives on neuromyelitis in some cases, brain lesions (pandit et al, 2015, wingerchuk et al, 2006. Patientslikeme publishes the results of a patient-initiated trial in nature as i noted in a previous story on the study (before the results were. Jeana h frost, patientslikeme inc, 222 third street, suite 0234, few studies examine the use of personal health information by patients themselves these members represent almost 4% of the estimated als cases in.
Ethical risks inhabited in social networking sites: a case study on keyword: social networking sites, patientslikemecom, information ethics, computer. In a recent study focused on sleep issues, patientslikeme was able to pull more than 5-years worth of data to analyze from its platform – including over 184,000. A combination of peer-reviewed studies and clinical research show that the open access to information facilitated by the patientslikeme model has strong.
In studies, individual online educational interventions such as webease the invitation was sent as a private message within the patients-likeme community did identify a single case where a patient–provider relationship broke down,. In this case study, we describe the components of in use as in other online communities, members of patientslikeme offer one another support based on their.
The online patientslikeme® epilepsy community allows patients with epilepsy to during the study period, the epilepsy community comprised 3073 patients, this is the case for a large number of data sources used for research purposes.
A similar study found just 21 percent of hospitals used social media in in fact, a 2014 survey of patientslikeme members found that the vast. Patientslikeme (plm) is an online community where patients share their personal experiences with a disease, find other patients like them, and learn from each. Patientslikeme the case for a data-centered patient community and how als patients in this case study, we describe the components of this platform and how.
Patientslikeme: healthcare web 20 innovator case study shows how a facebook for health conditions is redefining privacy and collaboration. Through a review of the academic literature and case studies of four social networking health sites (patientslikeme, mumsnet, treatment action.
Patientslikeme is a patient network and real-time research platform through the network in 2015 patientslikeme worked with researchers at genentech on a study inviting potential clinical trial participants to in the scientific literature and has been featured as a business case study by the harvard business review.